ilikebeingsickanddisabled

t h e w o r l d o f i n v i s i b l e i l l n e s s

Effect of invisible (hidden) disability on relationship

Most couples experience predictable problems at different stages of each individual’s life and stages of the relationship. Couples where one or both partners experience invisible chronic illness/disability experience the same problems, only more so and in additional ways.

WHAT ZOMBIES CAN TEACH YOU ABOUT FAMILY HISTORY

  Every zombie has a family.  And on the first and second days of November that zombie’s family, and thousands of others throughout Mexico, is honored in a celebration with 3,000 year old roots – Dia de los Muertos. Like an Irish wake or an African-American jazz funeral, Day of the Dead is a combination mourning and celebration held to honor those who have died.  Entire cemeteries are cheery with flowers, lit by […]

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SUICIDE ISN’T JUST ABOUT DEPRESSION

(This blog was first published by Disability.gov.)  In the mega-wattage aimed at Robin Williams’ suicide everyone had something to say.  But when all was said, everything went back to the way it’s always been when mental health’s the issue. The disabled or chronically ill population often inhabits a landscape where mental health is a place of shifting sands; they know that psychological symptoms are only part of the territory.  And […]

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WHAT YOU NEED TO KNOW ABOUT BEING HAPPY

  If you’re allergic to dogs, happiness is not a warm puppy. Metaphors about puppies, or anything else, are potentially dangerous.  Even knowing where happiness — like any other emotion — occurs on the emotional spectrum doesn’t give the whole story. The only way to really know about someone else’s happiness is for you to ask and them to tell. Thinking in deep and different ways about happiness isn’t easy.  Here […]

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WHEN A CAREGIVER DIES

    First published on Disability.gov For 70 years she put up with his (sometimes volcanic) rumblings.  He doted on her with diamonds, and was a poorer father for it. The youngest of 5 much older siblings, she was babied into being passive and timid.  He was a blustering bad boy who loved control; a lifelong natural at most things mechanical.  He took seriously his duties as a man, a spouse, […]

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3 WORDS MEN HATE TO HEAR

  Women, can you think of the last time your man brought up something that bugged him about you? Maybe it was that you talked to your friends too much, your mother too much, or him too much. But unless really, really pushed – like during an argument – men aren’t usually relationship-complainers; at least mine isn’t. It’s not that women do more talking than men – that truism got […]

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NO CURE FOR THIS PAIN

In a blend of contradictory emotions – from ecstasy to torture – human beings repeatedly demonstrate an addiction to love much the same as an addiction to, say, nicotine or cocaine. That’s not surprising, since the same reward circuitry in the brain reinforces both.   Feeling good comes from neuro- and biochemicals, too, like oxytocin and seratonin. Love’s intense longing and pining are singularly human and serve an evolutionary purpose:  no […]

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WE GOT TO LIVE TOGETHER.

The watchword of Sly & The Family Stone, a multiethnic band from the late sixties, was about being accepted for yourself.  Their everyday people were skinny, rich, fat, drummers, bankers, long hairs, short hairs, white, green, blue, and black. You get the picture. “Everyday People” songwriters Sylvester Steward and Todd Thomas didn’t say anything about married people in the 1968 chart topper, but I’m sure they would’ve had marriage been […]

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“YOU PUT MY HEART IN THE CLOSET.”

A young military couple, married a short time, sat on the loveseat in my counseling office. With no college and not much rank, the husband’d learned at The School of Hard Knocks about irresponsible purchases, credit card debt, and overspending in general. Some women are easy to buy for:   Some of us are into birthstones.  Others die for pampering massages, facials and manis.  Me, I’d kill for a personal chef and […]

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