ilikebeingsickanddisabled

t h e w o r l d o f i n v i s i b l e i l l n e s s

Couples

THE #1 REASON WE DON’T LIKE THE HOLIDAYS

Expectations. Say what you want about weariness, family dysfunction, commercialism, overeating and overspending.  Or that the sun’s been AWOL for 7 days straight and what’s left of the snow looks like it fell from a volcano.  Any number of stress disorders, worries about money, and disliking your own relatives (including Mother) count for nothing when a houseful’s coming, it’s your turn to entertain, and hubby’s at hockey with the kids. […]

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CASTING A SPELL: EASIER THAN YOU THINK

Casting a spell is done by the lovers among us; no exorcism needed.   Anyone who’s had a broken heart knows words and potions don’t work anyway.  And, unless you’re a crazy cat lady, the likelihood of being under the spell of a lover’s words is far greater than being enchanted by a black cat. Loving someone calls out parts of us untouched by anything else. Loving and being loved is the genesis […]

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WHAT YOU NEED TO KNOW ABOUT BEING HAPPY

  If you’re allergic to dogs, happiness is not a warm puppy. Metaphors about puppies, or anything else, are potentially dangerous.  Even knowing where happiness — like any other emotion — occurs on the emotional spectrum doesn’t give the whole story. The only way to really know about someone else’s happiness is for you to ask and them to tell. Thinking in deep and different ways about happiness isn’t easy.  Here […]

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WHEN A CAREGIVER DIES

    First published on Disability.gov For 70 years she put up with his (sometimes volcanic) rumblings.  He doted on her with diamonds, and was a poorer father for it. The youngest of 5 much older siblings, she was babied into being passive and timid.  He was a blustering bad boy who loved control; a lifelong natural at most things mechanical.  He took seriously his duties as a man, a spouse, […]

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IT TAKES TWO TO DO-SI-DO

Doin’ the do-si-do’s impossible to do by yourself.  I spent lots of years hanging out with girlfriends or not hanging out at all, which was more likely to be true. Most times, none of us even had someone who filled in for love. I’m not ashamed to say there are times I would’ve settled – my need for affiliation was that great – at least for awhile.  Although I did […]

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THAT GIRL KEEPS FALLING ON HER BUTT

My balance, isn’t. So when I head straight toward the bushes at the entrance to my building it isn’t surprising. Bushes are a trigger in picturing my first (and only) experience as a new MSer in an MS support group.   Recommended by my neurologist, the group experience was meant to help me cope with the way-past-due-diagnosis of my disease. Instead, it freaked me out. Walkers, wheelchairs, canes, crutches – and me, invisibly […]

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