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Tag Archive for ‘self care’

WHEN A CAREGIVER DIES

    First published on Disability.gov For 70 years she put up with his (sometimes volcanic) rumblings.  He doted on her with diamonds, and was a poorer father for it. The youngest of 5 much older siblings, she was babied into being passive and timid.  He was a blustering bad boy who loved control; a lifelong natural at most things mechanical.  He took seriously his duties as a man, a spouse, […]

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INVISIBLE DISABILITY GOT YOU SIDELINED THIS WINTER?

For those of us who are disabled, invisibly so, preparing for  weather that turns wintry follows a simple self-care rule:  stay inside. As multiple sclerosis has progressed in me, simple tasks loom large. Accumulation of simple tasks makes negotiating my environment literally hazardous to my health. And I’m not alone in what can happen: Impaired mobility.   “Give me something to hold onto, like a railing, or a walker,” I said […]

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SAVE ME FROM MYSELF!

SAVE ME FROM MYSELF! Twenty seven years ago, when David and I first married, among the things I heard him say was that he wanted “an independent woman” as a wife. To someone like me, who has m.s. and who learned in childhood that playing “the victim” was the way to being loved, that description of “independent” was scary. Not because of working, because I always have, but from the standpoint of not […]

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