ilikebeingsickanddisabled

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Tag Archive for ‘chronic illness’

WHEN A CAREGIVER DIES

    First published on Disability.gov For 70 years she put up with his (sometimes volcanic) rumblings.  He doted on her with diamonds, and was a poorer father for it. The youngest of 5 much older siblings, she was babied into being passive and timid.  He was a blustering bad boy who loved control; a lifelong natural at most things mechanical.  He took seriously his duties as a man, a spouse, […]

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THAT GIRL KEEPS FALLING ON HER BUTT

My balance, isn’t. So when I head straight toward the bushes at the entrance to my building it isn’t surprising. Bushes are a trigger in picturing my first (and only) experience as a new MSer in an MS support group.   Recommended by my neurologist, the group experience was meant to help me cope with the way-past-due-diagnosis of my disease. Instead, it freaked me out. Walkers, wheelchairs, canes, crutches – and me, invisibly […]

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NASA’S PHOTO: PROOF OF GOD’S EXISTENCE?

What’s a hand doing in deep space? And what’s it attached to? Is God just a big hand? Wait a minute.  Is that a hand at all? The so-called “Hand of God” is the result of a combination of NASA’s Nuclear Spectroscopic Telescope Array, or NuStar, combined with Chandra X-ray Observatory’s imaging.   God (and Superman) only knows what that pulsaristic, X-ray, and magnetic energy stuff’s about. That we humans jump […]

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READ IN 92 COUNTRIES!

The WordPress.com stats helper monkeys prepared a 2013 annual report for this blog. A San Francisco cable car holds 60 people. This blog was viewed about 3,500 times in 2013. If it were a cable car, it would take about 58 trips to carry that many people. Wowee zowie! There’s still a long way to go in making people aware of invisible disabilities.  And that so many of us experience […]

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CHOOSING TO BE DISABLED.

Even if the claims that candy causes behavioral problems are anecdotal, one thing is for sure: An American diet full of sugar is a significant cause of childhood obesity. But it tastes so darned good. The Centers for Disease Control report that 1 in 6 children between the ages of 2 and 19 is obese. Aside from the psychosocial aspects of being bullied or having no date for the 8th grade […]

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A PRETTY BIG BUTT

Doing work you’re passionate about has been the imperative for years now. This, despite the contined high unemployment rate, a rate that doesn’t even reflect people who gave up trying to find work years ago. Ironically, they’re called the “invisible unemployed” and there’s about 86 million of them.  Like the “invisibly disabled”, both are a large part of our society where the “invisible” part suggests monkeys with hands over their […]

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BEING INTENTIONAL: HOW DID I GET HERE?

The autopilot in us keeps us so far from making choices that our lives go by like getting to work — can’t even remember how we got there. I tell myself that if life wasn’t so full and whirling I’d be more of a participant instead of bystanding   But getting in “the flow” isn’t singular and it isn’t the same for each of us.  While I suspect that lots of us […]

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“If you have multiple sclerosis, you’re treated with respect.”

The following assertion was made by Maxine Cunningham, founder and director of Empowered Walking Enterprise/Ministries.  My response follows. “Dignity is not a word that we often hear in connection with how we treat persons with a chronic mental illness – YES if you have cancer, ALS, multiple sclerosis, etc. Dignity and full personhood – that we might be whole.” As a therapist with multiple sclerosis, and a Board member of the Invisible Disabilities […]

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