ilikebeingsickanddisabled

t h e w o r l d o f i n v i s i b l e i l l n e s s

Stigma

WHY DISABILITY INCLUSION WON’T WORK

This post was first published the first week of August, 2014 by the federal government’s blog Disability.gov.  To date it has had over 1,500 hits. As a Marriage & Family Therapist with multiple sclerosis, I write for Disability.gov, my own blog, and others like it, getting the opportunity to be a source of strength for people and their families. That’s why I was surprised when one organization denied my professional […]

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THAT GIRL KEEPS FALLING ON HER BUTT

My balance, isn’t. So when I head straight toward the bushes at the entrance to my building it isn’t surprising. Bushes are a trigger in picturing my first (and only) experience as a new MSer in an MS support group.   Recommended by my neurologist, the group experience was meant to help me cope with the way-past-due-diagnosis of my disease. Instead, it freaked me out. Walkers, wheelchairs, canes, crutches – and me, invisibly […]

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“If you have multiple sclerosis, you’re treated with respect.”

The following assertion was made by Maxine Cunningham, founder and director of Empowered Walking Enterprise/Ministries.  My response follows. “Dignity is not a word that we often hear in connection with how we treat persons with a chronic mental illness – YES if you have cancer, ALS, multiple sclerosis, etc. Dignity and full personhood – that we might be whole.” As a therapist with multiple sclerosis, and a Board member of the Invisible Disabilities […]

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