ilikebeingsickanddisabled

t h e w o r l d o f i n v i s i b l e i l l n e s s

MS

WHO TELLS YOU YOU’RE BEAUTIFUL?

    Years ago David and I were in Texas for the funeral of his mother who had died only two days short of her 94th birthday. Although David and his sisters were far busier than I was, those four days were nevertheless fatiguing for me.  So when we boarded the bus from the car rental center back to the terminal I was off-balanced and tired. “What you doin’ luggin’ […]

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INVISIBLE DISABILITY GOT YOU SIDELINED THIS WINTER?

For those of us who are disabled, invisibly so, preparing for  weather that turns wintry follows a simple self-care rule:  stay inside. As multiple sclerosis has progressed in me, simple tasks loom large. Accumulation of simple tasks makes negotiating my environment literally hazardous to my health. And I’m not alone in what can happen: Impaired mobility.   “Give me something to hold onto, like a railing, or a walker,” I said […]

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THAT GIRL KEEPS FALLING ON HER BUTT

My balance, isn’t. So when I head straight toward the bushes at the entrance to my building it isn’t surprising. Bushes are a trigger in picturing my first (and only) experience as a new MSer in an MS support group.   Recommended by my neurologist, the group experience was meant to help me cope with the way-past-due-diagnosis of my disease. Instead, it freaked me out. Walkers, wheelchairs, canes, crutches – and me, invisibly […]

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