ilikebeingsickanddisabled

t h e w o r l d o f i n v i s i b l e i l l n e s s

Invisable illnesses

RUNNING BLIND

Super-star athletes are polishing their personas with the advent of the Summer Olympics to be held in Rio de Janeiro in 2016.  One of them, Jamaican mega-medal winner Usain Bolt, has the gracefulness of a natural athlete. With his perpetual smile and generally good nature, Bolt is no pushover. One doesn’t get the impression that Usain Bolt would promote something disagreeable. Despite his gifts, or maybe because of them, Bolt also demonstrates a remarkably generous spirit, e.g., his […]

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INVISIBLE DISABILITY GOT YOU SIDELINED THIS WINTER?

For those of us who are disabled, invisibly so, preparing for  weather that turns wintry follows a simple self-care rule:  stay inside. As multiple sclerosis has progressed in me, simple tasks loom large. Accumulation of simple tasks makes negotiating my environment literally hazardous to my health. And I’m not alone in what can happen: Impaired mobility.   “Give me something to hold onto, like a railing, or a walker,” I said […]

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THAT GIRL KEEPS FALLING ON HER BUTT

My balance, isn’t. So when I head straight toward the bushes at the entrance to my building it isn’t surprising. Bushes are a trigger in picturing my first (and only) experience as a new MSer in an MS support group.   Recommended by my neurologist, the group experience was meant to help me cope with the way-past-due-diagnosis of my disease. Instead, it freaked me out. Walkers, wheelchairs, canes, crutches – and me, invisibly […]

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HAVE SEX OR DO LAUNDRY?

No brainer, right?  But for many women, it’s not as stupid a question as you’d think. The 21st Century may see a socioeconomic shift in favor of women, e.g. more upper-level management positions, more business owners, greater control of wealth. Success comes at a price; working harder for longer hours upsets the already teetering balance among personal, relationship, and family demands.  Another price?  Women are just as likely to experience […]

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How Come It’s “We’re Pregnant” But It’s Not “We’re Disabled”?

I don’t know when it became fashionable to identify pregnancy as an adventure à deux.  It always seemed lopsided that pregnancy excluded men from throwing up, having swollen ankles and shrewish moods.  I’m not even talking about all those forever changes like stretch marks, a bigger butt, and wider hips.  With the possibility of gestational diabetes, postpartum depression, or miscarriage, the adventure becomes a challenge, albeit one that affects the […]

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“If you have multiple sclerosis, you’re treated with respect.”

The following assertion was made by Maxine Cunningham, founder and director of Empowered Walking Enterprise/Ministries.  My response follows. “Dignity is not a word that we often hear in connection with how we treat persons with a chronic mental illness – YES if you have cancer, ALS, multiple sclerosis, etc. Dignity and full personhood – that we might be whole.” As a therapist with multiple sclerosis, and a Board member of the Invisible Disabilities […]

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