ilikebeingsickanddisabled

t h e w o r l d o f i n v i s i b l e i l l n e s s

Fibromyalgia

INVISIBLE DISABILITY GOT YOU SIDELINED THIS WINTER?

For those of us who are disabled, invisibly so, preparing for  weather that turns wintry follows a simple self-care rule:  stay inside. As multiple sclerosis has progressed in me, simple tasks loom large. Accumulation of simple tasks makes negotiating my environment literally hazardous to my health. And I’m not alone in what can happen: Impaired mobility.   “Give me something to hold onto, like a railing, or a walker,” I said […]

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How Come It’s “We’re Pregnant” But It’s Not “We’re Disabled”?

I don’t know when it became fashionable to identify pregnancy as an adventure à deux.  It always seemed lopsided that pregnancy excluded men from throwing up, having swollen ankles and shrewish moods.  I’m not even talking about all those forever changes like stretch marks, a bigger butt, and wider hips.  With the possibility of gestational diabetes, postpartum depression, or miscarriage, the adventure becomes a challenge, albeit one that affects the […]

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“If you have multiple sclerosis, you’re treated with respect.”

The following assertion was made by Maxine Cunningham, founder and director of Empowered Walking Enterprise/Ministries.  My response follows. “Dignity is not a word that we often hear in connection with how we treat persons with a chronic mental illness – YES if you have cancer, ALS, multiple sclerosis, etc. Dignity and full personhood – that we might be whole.” As a therapist with multiple sclerosis, and a Board member of the Invisible Disabilities […]

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CAN I BORROW YOUR FINGER FOR A SEC?

  Here’s a news flash:  stress can make you sick. Maybe you haven’t gotten the message that stress can have a permanent effect on chronic illness.  Clouds your thinking, screws up your judgment.  Gives you the weepies and the angries.  Can take away your will to vacuum the house or cook a meal.  The effects of stress on the mood and memory components of your brain can get screwed up […]

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