ilikebeingsickanddisabled

t h e w o r l d o f i n v i s i b l e i l l n e s s

Disability/stigma

DO YOU NEED YOUR THERAPIST TO BE HUMAN?

“I can’t work with someone who’s broken,” he said calmly. The young man had just read my Disclosure, a description of rights that, as a Marriage & Family Therapist, I’m legally required to give all clients.  Although it isn’t necessary, my Disclosure also relates that I have multiple sclerosis; I don’t want clients to wonder whether my stumbling is about a liquid lunch. Broken, he said.  Broken.  I never imagine […]

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RUNNING BLIND

Super-star athletes are polishing their personas with the advent of the Summer Olympics to be held in Rio de Janeiro in 2016.  One of them, Jamaican mega-medal winner Usain Bolt, has the gracefulness of a natural athlete. With his perpetual smile and generally good nature, Bolt is no pushover. One doesn’t get the impression that Usain Bolt would promote something disagreeable. Despite his gifts, or maybe because of them, Bolt also demonstrates a remarkably generous spirit, e.g., his […]

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WHY DISABILITY INCLUSION WON’T WORK

This post was first published the first week of August, 2014 by the federal government’s blog Disability.gov.  To date it has had over 1,500 hits. As a Marriage & Family Therapist with multiple sclerosis, I write for Disability.gov, my own blog, and others like it, getting the opportunity to be a source of strength for people and their families. That’s why I was surprised when one organization denied my professional […]

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THAT GIRL KEEPS FALLING ON HER BUTT

My balance, isn’t. So when I head straight toward the bushes at the entrance to my building it isn’t surprising. Bushes are a trigger in picturing my first (and only) experience as a new MSer in an MS support group.   Recommended by my neurologist, the group experience was meant to help me cope with the way-past-due-diagnosis of my disease. Instead, it freaked me out. Walkers, wheelchairs, canes, crutches – and me, invisibly […]

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How Come It’s “We’re Pregnant” But It’s Not “We’re Disabled”?

I don’t know when it became fashionable to identify pregnancy as an adventure à deux.  It always seemed lopsided that pregnancy excluded men from throwing up, having swollen ankles and shrewish moods.  I’m not even talking about all those forever changes like stretch marks, a bigger butt, and wider hips.  With the possibility of gestational diabetes, postpartum depression, or miscarriage, the adventure becomes a challenge, albeit one that affects the […]

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